Charlie - Age 7

Hi,

I’m charlie and I’m now 7.

I developed infantile spasms at 6 months old and that settled until just before 1 year old.
I had my first of many status seizures and ended up on life support at 16 months.
It took a while to recover as my muscle tone was so low but was still very smiley and happy. 🙂
When I was 3 my mitochondrial disorder really took hold.
Since then I’m now unable to smile and have lost all use of limbs 🙁
I’m now peg fed and have constant seizure activity – epilepsia partialis continua.
I keep my mummy and daddy very busy.
BUT
I enjoy being home and having cuddles with my little sister and Mummy & Daddy <3 Epilepsy Sucks UK has helped me please say thanks and vote for them to help others! VOTE NOW

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