Ellie- Mae & Caleb

Hi,

I am Ellie-Mae.

I am 6 years old.

My brother Caleb has epilepsy too.
We have a life-limiting neuro-degenerative condition called batten disease.
Epilepsy is the first symptom of the condition beginning when we were 3 year old.
Seizures associated with Batten disease are difficult to control and worsen over time. We have lost our mobility and speech and are losing our vision and ability to eat.
Despite these great challenges we are happy and have great times with our family and friends who love us very much.
Our lives are short and so every day is precious.
We love swimming and donkey riding.

Epilepsy Sucks UK has helped me please say thanks and vote for them to help others!
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