My name is Lexi.
I am now 2 years old.
I had the first seizure at 4 months old while my mummy was feeding me before bed.
It only lasted 20 seconds and was just strange eye movement and I went to sleep like normal.
When my daddy came hone that night mum said there’s something wrong and we need to go to hospital.
I felt fine in A&E.
Mum thought she had worried for nothing.
Then while waiting I had another but this time went floppy.
My daddy shouted for help!
A nurse grabbed me off my mum. she rushed me into resus.
It was the scariest time of my life.
I was in hospital for 2 weeks.
I wasn’t given a diagnosis as all tests came back clear.
I was treated for lots of weird diseases.
We then met our neurologist who was almost certain it was epilepsy.
At 6 months old finally a EEG showed focal epilepsy.
I also progressed to have infinite spasms.
Thankfully they were controlled within 12 hours of diagnosis.
I now have development delay.
I also have hypomobility problems.
I am making good progress.
A recent MRI shows that I have a ‘normal’ brain.
I continue to catch up.
I still have several focal seizures a week.
I am trying lots of different combination of meds in the hope they will be controlled.
I am also going to be part of the epilepsy genetics trial.
My mummy is very proud of me.
Epilepsy Sucks UK has helped me please say thanks and vote for them to help others!