Lili Mai - Age 4


My name is Lili Mai,

I am 4 years old.

I had my 1st tonic clonic seizure aged 9 months.
I was diagnosed with epilepsy after 5 further seizures and an EEG.
I have been on medication ever since.
My seizures have changed over time and I have now been diagnosed with ‘polymorphic epilepsy’
It means I have multiple types of seizures.
My main seizure types are complex partials, absences, myoclonic’s and drop seizures.
I do also have tonic and tonic clonic seizures.
I have now been on 2 different drugs for over 12 months.
There’s has been a massive improvement in my seizure control.
I still have seizures most weeks.
I am always happy and never let epilepsy hold me back!
I want to be a fire fighter when I grow up so I can squirt water everywhere. 🙂

Epilepsy Sucks UK has helped me please say thanks and vote for them to help others!

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