I’m Malakai I’m 19 months old.
I was diagnosed with epilepsy at 9 months old after having a 2 and a half hour status episode.
I started off having focal seizures then went on to having constant status episodes until I eventually ended up on a ventilator this January.
After 3 weeks of being heavily sedated, more medicine tweaks and the ketogenic diet my status episodes seem to be under control after having about 30 in 3 months ranging from an hour to 9 hours in length.
I still have no diagnosis and have a number of other health problems but I’m a happy boy.
I have now been home since the 8th of March (tough wood).
I have several apnea seizures daily and still have several focal seizures.
We all know we’re not going to gain control of everything so for now I keep everyone on their toes ☺️❤️
Epilepsy Sucks UK has helped me please say thanks and vote for them to help others!