My name is Raelie,
I’m 6 years old.
I have Generalised Epilepsy which is apparently because I’ve got a part of a chromosome missing.
I have lots of little bits and bobs going on.
17 so far 🙁
I’m classed as a SWAN.
(Syndrome Without A Name).
It took 4 years of my mum telling the doctors to listen.
They finally gave the epilepsy diagnosis.
I needed a sleep deprived EEG to figure it out.
The Doctors didn’t say ‘sorry’ for not listening.
I get a new diagnoses every year.
It’s very frustrating.
When I grow up I want to be a princess!
I am already mum’s little princess 🙂
Epilepsy Sucks UK has helped me please say thanks and vote for them to help others.